Heart Update

We drove to Dallas yesterday for Caelyn's heart check up at Medical City. Her O2 sats were 96 (yay!), we did an EEG and an echo. She was so tired that she slept during the entire 45 minute echo. :)  Everyone kept commenting on what a wonderful baby she was, and how sweet she is. Well...duh. ;)  Anyways, Dr. Kao told us that Caelyn's left pulmonary artery is about 1/3 smaller than the right one, and it also leaks a bit. She said it will eventually need to be replaced (probably in her teens), and that most likely be another open heart surgery. I was thinking they would do it through a catheter, but Dr. Kao said that if it's the original valve they are replacing, they would need to open her chest up. Any consecutive valve replacements after that would most likely be through a catheter. But, we will just cross that road when we get there. As of right now, Dr. Kao said Caelyn looks great, and the valve should not affect her activity levels or her heart function. So we are pretty happy about that.
This past weekend, Caelyn was not feeling good, so I took her to the doctor. She ended up having double ear infections and a cold. So my sweet baby has not been feeling good this week. This is the very first time she has gotten sick. Hopefully in a few days the cold will start clearing up. She is on antibiotics for the ear infections, I think her ears already feel better. 
At physical therapy today, the PT was very impressed at how much Caelyn has done in the past week. She is sitting up on her own from laying down, and she is no longer rolling across the room. She does this kind of inch-worm type crawl. She gets up on her hands and knees and lunges forward, lands on her stomach, and gets up on her hands and knees again. It's so cute. The PT also spoke to a speech therapist and wants Caelyn to start that soon. So next week we will to PT and ST.
We are ready for the Holidays!! I can't wait to start shopping for my sweet baby girl. She is so spoiled. Haha! I've decided I'm going to hand-make as many gifts as I can. I've already made a few things...can't post it incase that person reads this. ;)
Well, anyways, here are a few cute pics for you to enjoy.

 We played dress-up one day...this is my pretty girl in her Christmas dress.

Caelyn sleeping during her echo at her heart check up.

Amazing Girl!

*I finally have my new computer, so I am able to update my blog more often now! Yay!*

Caelyn is such an amazing little girl. Her smile melts my heart everyday.

We went to the geneticist on Tuesday. She just got our family history and examined Caelyn to see which characteristics of 22q11 deletion syndrome (also known as DiGeorge Syndrome, Velo-Cardio Facial Syndrome (VCFS), and other names) she has. Caelyn has the facial features (prominent bridge of the nose, round nose tip, upper ears are folded, small head, ears stick out), some developmental delays, and she has a knot in front of her uvula which causes soft palate problems. That would be our answer as to why Caelyn has feeding issues. The doctor is referring us to an ENT for the soft palate problem.

Caelyn had her evaluation for physical therapy today. The therapist was very impressed! She said she is only about a month behind developmentally. Her fine motor skills are great, but she has a weak upper body due to the muscles and bone being separated when she had her open heart surgery. So because of that, she cannot pull up, crawl, or sit up from lying down.  I am so amazed by my little girl. She just keeps on showing us that nothing can hold her back.

We go to the cardiologist next week to check up on her heart! Pray that things look good! :)

Enough of the medical stuff! Haha! Caelyn went trick or treating on Halloween. We went with my older sister and her two little girls. Caelyn got lots of candy that she shared with Mommy and Daddy! ;P  She was definitely the cutest little giraffe I have ever seen.

Caelyn's great grandma (Memaw) passed away October 12. She loved Caelyn so very much. Everytime we went to visit Memaw she would just light up and get the biggest smile on her face. It makes me sad that Caelyn wont get to know her Memaw, but I'm sure she is watching down on Caelyn from up above.

   This is Caelyn visiting Memaw a few days before she passed away.

And here are some more adorable pictures of my gorgeous girl. :)  Enjoy!

                  Look at my big girl holding her own bottle!!!

                          Helping Daddy with the laundry.

           Nothing better than playing in a pile of newspaper!!

                              Looking pretty at Memaw's funeral.

                                  Sweet girl!

   

                         Look at that gorgeous smile.